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Paiges corner
04-20-2013, 06:38 AM
Post: #66
RE: Paiges corner
Here is the latest from Paiges corner! A tough decision, a tough little girl with even tougher parents......

Hello everyone,
I am happy to report Paige is moving on to real foods and is gnawing on graham crackers, corn puffs, Oreos (the sensible regular-stuf ones) and is drinking milk. She enjoys the new tastes more every day.
She is more active by the hour and has been crawling everywhere, chasing the dog, pulling herself up on stuff and even exploring kitchen cupboards. We think she is officially a toddler.
Tonight she got a sled ride and visited the neighbors. She also stomped in her first mud puddle.
Even as she makes all this awesome progress, Chels and I have had to make the tough decision to send our little girl back to surgery.
The reasoning is that the patchwork which was put into her heart in October is restricting the muscle and causing pulmonary hypertension -- basically extremely high pressure in her lungs. If it goes on for too long the hypertension will be fatal in months, years or maybe by the time she's 20 years old at the latest. We cannot stand on the sidelines and watch our girl leave us early after all she has been through. We recognize that she still has plenty of fight and we owe it to give her that chance.
The operation will undo some of the patchwork, relieving the hypertension but bringing back some of the issues she was dealing with before her October surgery. The risks associated are similar to her last operation.
By no means has this been an easy decision but, as my dad put it, we've been given the choice between a bad option and a terrible one. Doing nothing would be a terrible choice.
Her surgery is May 1. I ask that you put Paige in your nightly prayers or daily thoughts. Every gram of positive energy gives us an ounce of strength to get through the hard times. Every prayer reminds us of the good that Paige has brought into our world. Please keep it coming. It means a lot to us.
We will provide updates through this page after Paige's operation. They might be a couple days apart but we will try to be as consistent as possible.
Paige is blowing spit bubbles and fart noises now. I think it's time for her to go to bed.
Love to you all. Talk to you soon.
Chris

"Listen...Jump on a moonbeam and rise, ride it, glide it all the way"
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Messages In This Thread
Paiges corner - Markus Awreallyus - 11-14-2012, 07:59 AM
RE: Paiges corner - N'awlins - 11-14-2012, 10:36 AM
RE: Paiges corner - Nettie - 11-14-2012, 06:46 PM
RE: Paiges corner - Scythe Matters - 11-15-2012, 03:11 AM
RE: Paiges corner - Markus Awreallyus - 11-18-2012, 06:41 AM
RE: Paiges corner - HardwareGrl - 11-18-2012, 09:36 AM
RE: Paiges corner - Nettie - 11-18-2012, 11:59 AM
RE: Paiges corner - RN-PRN - 11-18-2012, 06:57 PM
RE: Paiges corner - 2Beers - 11-18-2012, 08:21 PM
RE: Paiges corner - Scythe Matters - 11-19-2012, 01:52 AM
RE: Paiges corner - BrianW - 11-20-2012, 01:52 PM
RE: Paiges corner - Markus Awreallyus - 11-26-2012, 07:37 AM
RE: Paiges corner - 2Beers - 11-26-2012, 09:07 AM
RE: Paiges corner - N'awlins - 11-26-2012, 11:32 AM
RE: Paiges corner - RN-PRN - 11-27-2012, 02:03 AM
RE: Paiges corner - Markus Awreallyus - 11-27-2012, 08:51 AM
RE: Paiges corner - HardwareGrl - 11-27-2012, 09:53 AM
RE: Paiges corner - Detroit Dan - 11-27-2012, 10:47 AM
RE: Paiges corner - Nettie - 11-27-2012, 07:46 PM
RE: Paiges corner - Scythe Matters - 11-29-2012, 07:48 PM
RE: Paiges corner - RN-PRN - 11-29-2012, 11:17 PM
RE: Paiges corner - Markus Awreallyus - 12-02-2012, 10:06 AM
RE: Paiges corner - Mufasa - 12-02-2012, 03:12 PM
RE: Paiges corner - Nettie - 12-02-2012, 04:14 PM
RE: Paiges corner - RN-PRN - 12-02-2012, 07:21 PM
RE: Paiges corner - 2Beers - 12-02-2012, 07:22 PM
RE: Paiges corner - burma.girl - 12-02-2012, 08:55 PM
RE: Paiges corner - Markus Awreallyus - 12-05-2012, 03:41 PM
RE: Paiges corner - N'awlins - 12-05-2012, 03:58 PM
RE: Paiges corner - Nettie - 12-05-2012, 05:59 PM
RE: Paiges corner - RN-PRN - 12-05-2012, 09:23 PM
RE: Paiges corner - Scythe Matters - 12-07-2012, 03:14 AM
RE: Paiges corner - Markus Awreallyus - 12-12-2012, 09:18 AM
RE: Paiges corner - N'awlins - 12-12-2012, 10:48 AM
RE: Paiges corner - Markus Awreallyus - 12-16-2012, 09:43 PM
RE: Paiges corner - HardwareGrl - 12-16-2012, 09:57 PM
RE: Paiges corner - Markus Awreallyus - 12-16-2012, 10:08 PM
RE: Paiges corner - Scythe Matters - 12-17-2012, 02:33 AM
RE: Paiges corner - N'awlins - 12-17-2012, 11:20 AM
RE: Paiges corner - Gungawoman - 12-20-2012, 10:32 AM
RE: Paiges corner - burma.girl - 12-20-2012, 11:54 PM
RE: Paiges corner - 2Beers - 12-21-2012, 07:25 AM
RE: Paiges corner - Markus Awreallyus - 12-26-2012, 08:25 AM
RE: Paiges corner - Nettie - 12-26-2012, 09:11 AM
RE: Paiges corner - Scythe Matters - 12-29-2012, 03:56 AM
RE: Paiges corner - Markus Awreallyus - 01-09-2013, 08:38 AM
RE: Paiges corner - N'awlins - 01-09-2013, 11:17 AM
RE: Paiges corner - Mufasa - 01-09-2013, 02:06 PM
RE: Paiges corner - Gungawoman - 01-09-2013, 05:41 PM
RE: Paiges corner - Nettie - 01-09-2013, 06:00 PM
RE: Paiges corner - 2Beers - 01-09-2013, 07:01 PM
RE: Paiges corner - RN-PRN - 01-11-2013, 06:52 PM
RE: Paiges corner - Boomer - 01-12-2013, 10:44 AM
RE: Paiges corner - Markus Awreallyus - 01-19-2013, 10:33 AM
RE: Paiges corner - RN-PRN - 01-19-2013, 11:09 AM
RE: Paiges corner - Gungawoman - 01-19-2013, 02:05 PM
RE: Paiges corner - Nettie - 01-19-2013, 03:46 PM
RE: Paiges corner - 2Beers - 01-19-2013, 09:07 PM
RE: Paiges corner - Boomer - 01-20-2013, 12:31 PM
RE: Paiges corner - Markus Awreallyus - 03-18-2013, 04:10 PM
RE: Paiges corner - Nettie - 03-18-2013, 05:09 PM
RE: Paiges corner - Gungawoman - 03-18-2013, 09:04 PM
RE: Paiges corner - RN-PRN - 03-18-2013, 10:42 PM
RE: Paiges corner - Scythe Matters - 03-20-2013, 02:04 AM
RE: Paiges corner - Markus Awreallyus - 03-20-2013, 09:20 AM
RE: Paiges corner - Markus Awreallyus - 04-20-2013 06:38 AM
RE: Paiges corner - 2Beers - 04-20-2013, 11:54 AM
RE: Paiges corner - Nettie - 04-20-2013, 09:04 PM
RE: Paiges corner - BrianW - 04-21-2013, 05:30 AM
RE: Paiges corner - Bageleth - 04-21-2013, 04:32 PM
RE: Paiges corner - RN-PRN - 04-22-2013, 10:48 PM
RE: Paiges corner - Markus Awreallyus - 05-02-2013, 06:29 PM
RE: Paiges corner - 2Beers - 05-03-2013, 06:13 AM
RE: Paiges corner - Nettie - 05-04-2013, 07:37 AM
RE: Paiges corner - Markus Awreallyus - 05-06-2013, 06:24 AM
RE: Paiges corner - old honda rider - 05-06-2013, 09:11 AM
RE: Paiges corner - Markus Awreallyus - 05-07-2013, 05:31 AM
RE: Paiges corner - 2Beers - 05-07-2013, 08:22 AM
RE: Paiges corner - Gungawoman - 05-07-2013, 02:28 PM
RE: Paiges corner - Nettie - 05-07-2013, 08:22 PM
RE: Paiges corner - old honda rider - 05-08-2013, 10:00 AM
RE: Paiges corner - Scythe Matters - 05-09-2013, 06:10 PM
RE: Paiges corner - Nettie - 06-23-2013, 09:18 AM
RE: Paiges corner - Markus Awreallyus - 06-24-2013, 07:45 AM
RE: Paiges corner - Gungawoman - 06-24-2013, 11:01 AM
RE: Paiges corner - Nettie - 06-24-2013, 05:46 PM
RE: Paiges corner - Bageleth - 06-24-2013, 09:23 PM
RE: Paiges corner - 2Beers - 06-25-2013, 06:34 AM
RE: Paiges corner - Scythe Matters - 06-26-2013, 04:47 AM
RE: Paiges corner - Wintertide - 06-26-2013, 06:05 PM
RE: Paiges corner - RN-PRN - 06-26-2013, 09:22 PM

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